Owing field understanding what encompasses a genetic identity will be an important aspect in living our livesThis collection of essays from various authors describes what it s like to live in the fear and knowledge of having a genetic trait The essays can really open up viewpoints you may have not considered before There are some pacing issues with the order of essays and seems to pick up near the end This may seem deliberate since it starts at a slower pace Just like the issue itself some of the essays conflict with each other because the authors are not sure "about what to with their own identity Description The author has compiled "what to do their own identity Description The author has compiled group of essays about genetic disorders from around fifteen different contributors all dealing with issues such as Alzheimer s cancer deafness and schizophrenia as examples It shows ust how complex this is It makes genetics humanI found this thought provoking very moving and extremely interestingHighlights I found this extremely interesting to read from an individual prospective The Long Arm by Clare Dunsford was fascinating in telling how Fragile X Syndrome affects not only the child or adult with it but previous generations The authors have put a personal touch to this rather than ust a book about genetic disorders I grew up in a this rather than ust a book about genetic disorders I grew up in a when genetics was not ta. Enia cystic fibrosis Tay Sachs hypertrophic cardiomyopathy fragile X or Fanconi anemia All of their stories remind us that genetic health is complicated dynamic and above all deeply personalContributorsMisha Angrist Amy Boesky Kelly Cupo Michael Downing Clare Dunsford Mara Faulkner Christine Kehl O’Hagan Charlie Pierce Kate Preskenis Emily Rapp Jennifer Rosner Joanna Rudnick Anabel Stenzel Isabel Stenzel Byrnes Laurie Strongin Patrick Tracey Alice Wexl. .
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Overall it was very interesting and insightful The essays varied in uality somewhat which did limit it I am not one for short stories I feel like as soon as I start to like someone the relationship is over This was a different experience I read this book for my Medicine and Literature book club Each story felt complete and the series flowed beautifully I learned a lot of new perspectives which I really enjoyed I think someone who is struggling with a genetic disease ex a friend who s sister ust found out she has the BRCA mutation will find this book to provide a great insight into what they are going through There s nothing I enjoy than a first person essay so I was looking forward to reading this book This book contains sixteen essays from contributors whose lives have been touched by the specter of genetic disorders Some writers tell of suffering from disease or watching family members suffer while others speak of the possibility of "Disease Looming And What That Means For Their State Of "looming and what that means for their state of and the decisions they makeUnfortunately for the most part I found the essays an unsuccessful mix of story and study It s the
Personal Narrative That Interestsnarrative that interests most and in most of the essays it is overshadowed by lengthy discussions of a scholarly nature Only a few essays held my interest Why Would You. The contributors to The Story Within share powerful experiences of living with genetic disorders Their stories illustrate the complexities involved in making decisions about genetic diseases whether to be tested who to tell whether to have children and whether and how to treat children medically if treatment is available More broadly they consider how genetic information shapes the ways we see ourselves the world and our actions within it People affected. .
Be Wanting to Know Not Talking about Schizophrenia in Ireland String Theory "or How One Family Listens through Deafness What If and I think "How One Family Listens through Deafness What If and I think s because in these essays the elements of story and study were well balanced A person for whom genetic disease is a personal and urgent matter would appreciate the scientific side of these essays than didAs examples of collections of essays having a connection to health matters that I did enjoy I would recommend anthologies edited by Lee Gutkind Becoming a Doctor From Student to Specialist Doctor Writers Share Their Experiences and I Wasn t Strong Like This When I Started Out True Stories of Becoming a Nurse His earlier anthology At the End of Life True Stories About How We Die is also worth reading although I found the stories in that book somewhat one note hospitals bad hospice good As someone interested in both personal essays and genetic diagnoses I was really excited when I first heard about this book Though not all the essays were beautifully written they all made me think and taught me important things as a future genetics healthcare provider I particularly enjoyed the essays in the third section of the book I think I ll re read this periodically to refresh my perspective on the patients experience of genetic diagnoses As genetics becomes a gr. By genetic disease respond to such
choices in varied and personal ways These writers reflect that breadth of response yet they share the desirein varied and personal ways These writers reflect that breadth of response yet they share the desire challenge a restricted sense of what health is or whose life has value They write hoping to expand conversations about genetics and identity to deepen debate and generate uestions They or their families are affected by Huntington’s disease Alzheimer’s disease cancer genetic deafness or blindness schizophr. ,